| als.nl | Stichting ALS Nederland | The website provides information about ALS, including symptoms, diagnosis, treatment, and research, as well as stories from patients and their caregivers. Furthermore, the foundation offers opportunities for donation, organizing events, and participation in activities, aimed at raising awareness and fundraising. The site also contains information about the organization itself, its mission, accountability, team members, and collaborations with other organizations and patient associations. | Social Organization → Patient Organizations 259 | als 45 patient 4082 donation 5110 research 8967 collaboration 16036 event 45199 | North-Holland → Amsterdam 41253 |
| alspatientenvereniging.nl | ALS Patient Association | The association offers peer support, themed meetings, and a buddy program to support individuals with these diagnoses and their families. The website provides information on various aspects of the disease, including treatment options, care, research, and practical assistance such as home adaptations and aids. The association was initiated in 2014 by two patients and values patient participation ('from, for, and by patients'). | Social Organization → Patient Organizations 259 | als 45 peer support 68 buddy 133 event 45199 | |
| als-centrum.nl | ALS Center Netherlands | The center conducts scientific research to find effective treatments and offers training and quality projects for better care quality. The center's work is nationally and internationally focused and is coordinated by UMC Utrecht. Recent news reports discuss a potential link between dementia and frequent headers in football, with a possible connection to ALS also mentioned. | Anatomy & Systems → Neurology 1340 | als 45 diagnosis 1490 research 8967 care 12338 treatment 21203 training 28133 | Utrecht → East-> Rijnsweerd 143 |
| alszorgregelaars.nl | ALS Zorgregelaars | The website provides information on the practical aspects of an ALS diagnosis, including regulations, aids, and the impact on various areas of life such as work, housing, and independence. ALS Zorgregelaars offers specialized support and assistance, with the patient retaining control and being cared for by professional help. The organization focuses on helping patients live as long and comfortably as possible, and provides information on reimbursement through WMO and Wlz, as well as a community and the core values of the organization. | Social Organization → Patient Organizations 259 | als 45 reimbursement 465 regulation 1350 community 7931 | |
| alsopdeweg.nl | Stichting ALS op de weg | The foundation supplies various tools, including wheelchair buses, cars, bicycles and chairs, with brands such as Van Raam, Cannondale and Carendo. In addition, lifts, walkers and electric wheelchairs are offered, as well as other products such as drysuits and bedside tables. The foundation has published a jubilee magazine and organizes donation campaigns, such as the Sinterklaas chocolate letters and gingerbread man campaign, to support its activities. | Bicycles & Wheels → Bicycles 1466 | wheelchair 306 aid 427 lift 445 bicycle 2838 donation 5110 | |
| marcelvanhooijdonk-amyotrophic-lateral-sclerosis.nl | ALS Nederland | The website describes Amyotrophic Lateral Sclerosis (ALS) as a progressive neurological disease that leads to muscle weakness and paralysis and often to death due to the failure of breathing muscles. Statistics regarding the prevalence of ALS in the Netherlands, the average life expectancy of patients, and the percentage of patients living longer than five years are presented. The website emphasizes that there is currently only one approved medication to slow the progression of the disease, but not to cure it, and that scientific research is the only way to find a solution. ALS Nederland is responsible for funding this research. The ALS Center in the Netherlands is also mentioned as an important research center. | Conditions → Neurological Conditions 20 | als 45 foundation 6678 research 8967 | |
| nulprocentvoorals.nl | 0%4ALS | The challenge asks participants to stop an unhealthy habit in January, such as snacking or smoking, and donate the savings to research. Participants can sponsor their actions by asking family and friends to donate. The goal is to raise money for scientific research into ALS, PSMA, and PLS. The website provides information on how the challenge works, including action tips, a social media toolkit, and contact information. | Fundraising → Crowdfunding 22 | challenge 1697 sponsorship 2686 campaign 3428 donation 5110 research 8967 | |
| inmemoriamvoorals.nl | Stichting ALS Nederland | The website offers the possibility to create an online collection bus to commemorate a loved one who suffered from ALS. The collected funds are allocated to scientific research into the cause and treatment of ALS, as well as measures to improve the quality of life for patients and their families. The Stichting ALS Nederland is entirely dependent on donations and does not receive government funding. | Diseases → Neurological Diseases 21 | als 45 donation 5110 foundation 6678 collection 7566 research 8967 | |
| teamalsbussum.nl | Team ALS Bussum | Team ALS Bussum organizes various events, such as bingo nights, walking and cycling routes, and quiz nights, to raise money for ALS research. The website describes the personal story of Natascha Versteeg, who received an ALS diagnosis in 2005 and has experienced strange symptoms since 2004. Amyotrophic Lateral Sclerosis (ALS) is a neurological disease that affects muscle function, with motor neurons dying and signals not reaching the muscles. | Outdoor & Recreation → Outdoor Events 110 | als 45 story 8285 event 45199 | Gooise Meren → Bussum 2201 |
| sprakeloosje.nl | Nynke Duijff | The blog covers topics such as the nature of ALS, personal experiences with the illness, the daily impact on the author’s life, and updates on her health journey. Archived blog posts from 2016 to 2024 are included, including ‘Sprakeloosjes’ and status reports. The website offers topics like tips and tricks related to ALS, interviews and media attention, as well as updates on activities such as the Frysk Diktee. | Personal Stories → Illness Stories 13 | als 45 blog 13392 | |
| alslimburg.nl | Stichting ALS Limburg | ALS (Amyotrophic Lateral Sclerosis) is a severe and incurable neurodegenerative disease that claims the lives of approximately 500 Dutch people each year. The disease is characterized by the progressive loss of muscles, often through the failure of breathing muscles, without affecting the mind. The foundation relies on sponsorship and aims to stimulate research and provide support. | Charities → Fundraising 1005 | als 45 sponsorship 2686 patient 4082 research 8967 | Limburg → Venray 1601 |
| hoe-als.nl | Freek Berendsen | Freek Berendsen received an ALS diagnosis in October 2021 at the UMC Utrecht, a disease without medication with an estimated lifespan of 3 to 5 years. Through the website, he aims to take readers along in his fight against ALS, describing both the positive aspects of living and the challenges of the disease. The website also contains recent blog posts about personal experiences, recent projects, such as the construction of a care room, and an organized ALS family day. | Social → Personal Blog 2718 | als 45 disease 285 blog 13392 | |